Mason on the Ventilator
After he pulled out the breathing tube he was able to go on a CPAP machine, yes a machine very much like the one used for sleep apnea in adults. He was on this machine for 2 days. He was also getting Jaundice and had to go under lights for 2 days. With the "sunglasses on and the CPAP machine I was not able to even see his face. It made me so sad not to be able to look at him. I was only able to hold his little fingers around one of mine. I sat by his bedside for 3 days not being able see him, hold him, or really even touch him. Too much stimulation in preemies can cause stress and set them further back. After he got off the CPAP he was able to go to the High Flow Oxygen. Much like a regular nasal canula, but it is able to force air into the lungs much better.
this point on, there were any ups and downs. The NICU is so hard. They call it the NICU rollercoaster because there are soo many ups and downs. For two steps forward you take one step back. The DR told me that he was going to be able to come home on day 8. Well on day 7 he wasn't able to hold his temperature anymore and started to get jaundice again. I knew that night that we were not going to be able to come home the next day. It was sooo hard for me to grasp. I was so excited to just have my baby come home. The next couple of days he did really well and we were told we would be able to come home on day 10. Well on night 10 he started to have some blood in his stool. They immediatly stopped feeding him and took Xrays to check for NEC. A very serious complication in the colon of preemies. The told me that the Xray looked a little suspecious and that there was a chance that we would have to life flight him to Primary childrens that night. I wasn't able to feed him all night long. I was a mess thinking of the hunger pains that he must be having and again coming to the realization that I was not going to be able to take him home that morning. After a very sweet and comforting blessing that Mason and I recieved I felt much better and had a very peaceful feeling. The next morning the DR came in and told me that I could feed him. He felt that Mason was acting too "healthy" to have NEC and the blood was probably from the fortifier they started to put into his milk to add calories. The next day we were on our way home. I was so thrilled. It was the best feeling in the world walking out of the hospital with my baby. If anyone has ever had to leave the hospital without your baby you know it is the worst feeling in the world. I was able to stay at the hospital with him in my recovery room the whole 12 days. I never left his side for longer than 2 hours. And while I was away my mom was able to come and stay with him. My mom and Kasey were honestly my back bone through the whole ordeal. Mason was so small he had to come home in a Car Bed. Yeah, I didn't know they made those either.
His Car Bed
For the first 5 days we went and stayed at my mom and dads. Preemies are so hard when they come home. They have to be woken up every 3 hours to eat, and can't nurse so I have to pump the milk and then feed him and it takes preemies over 45 min to eat and ounce of milk. So total feeding time is over and hour and then I got an hour and 45 min of sleep and time to do it again. So again, my mom came to my rescue and let us stay there so she could help me with some of the feedings and with my girls.
Mason in the PICU
On day 5 of the 7 with no food a Xray came back and they thought that the NEC had moved to a different part of his bowels. The DR came in to talk with me and felt it necessary that we start all over day one with no food. I don't know why, But I knew in my gut that everything was fine this time. I knew that it hadn't "moved" to a new spot and I stood my ground with the DR telling him that I wanted to watch the Xrays over the next 10 hours and see what they said. Sure enought the following Xrays were Clean and showed no signs of NEC. Slowly once again after a total of 9 days without food. They started to allow me to feed my baby once again. They continued the Xrays as he started to eat to make sure that the NEC would not come back when reintroduced to food. Every Xray we received i prayed my guts out, that the NEC was not there and that the radiologist reading it would read it with a clear mind, because of the scare we received a couple days earlier when it was read wrong. I became soo close to my heavenly father and learned to rely on him in so many ways. Finally after 12 days at Primary's we were released. Again, walking out of the doors of that hospital was the best feeling in the world. I felt like we were being released from prison! After 25 days in the hospital As I look back strangly enough there are a couple of things I miss. Having all the time in the world to just sit and hold and love my little Mason. Having the time to pray all the time. Not having the world to distract me from turning to my savior every hour of the day. As We returned home and to everyday life, I couldn't be more greatful to have my whole family under one roof. To be able to hold my little girls once again. To be able to go to bed with my sweet husband. To be able to sleep in my own bed, to be able to use the baby swing that had been sitting empty in my family room for weeks, to be able to dress him in his clothes, instead of having to have him naked so all of his monitors could be on his chest. It is so funny how the little things all the sudden mean the world. I had so many people praying, fasting, putting our name on the prayer roll, and taking care of us. Helping with our girls, and trying to make thier life as normal as possible. I am so greatful for all of you. Especially my mom. She is my backbone, she knew how heartbroken I was. The first day we were there she brought me bags of things to do to keep me busy. She brought everything she needed so she could give me a pedicure in the hospital room. She did everything she could think of to make me as happy as possible. She stayed until 3 in the morning until after I feel asleep because she knew I wouldn't sleep if someone wasn't there to look after Mason. She would come in everyday and bring my girls to me, to have lunch to bring me snacks and clean clothes, and was the Mom to my kids while Kasey was trying to be the provider and MR MOM all at once. I can't even begin to express my grattitude for everyone that helped us during our hard time. The day we left Primary's
Mason is now 8 LBs and doing great. He is honestly the sweetest baby ever and I am sooo In love with him. We have so much to be greatful for and I am so blessed to have 3 darling kids and a sweet husband!